"Carrie - do not hold on too tight." I scoffed at our beloved neonatologist when he said this. We were standing over the examining table, inspecting Bella's double lumen port that lead to her vena cava. She had just had this life giving mechanism inserted the week before and really this appointment was to scrutinize me … Continue reading 12.
medically fragile kid
Let Me Tell You About Owen
Admittedly, I never knew there was a difference. How could I? Like so many things in life, we do not become knowledgeable until it becomes relevant. I have seen service dogs around the community, and I knew that these dogs are working and not to be acknowledged or approached without consent. I knew about therapy … Continue reading Let Me Tell You About Owen
I cannot believe it. Honestly. On Saturday, June 20th, we completely missed the 10th Anniversary of Bella's Kidney Transplant. Missed it. Woosh. Is that a good thing? I guess it is in the sense that life has moved on. And we are living it. And Bella is doing well. My body knew, however. I felt … Continue reading 10th Anniversary
Bella asked me tonight if I remembered the day of her birth. Boy, do I. I remember so many things, and yet, there is so much I do not remember. I remember the roads to the hospital - the route we took so many times. Too many times. I remember the look on my doctor's … Continue reading Remember.